National Patient Registry

Chapter Lahore Chapter Rawalpindi Chapter Quetta Chapter Peshawar Chapter Karachi Chapter Gender Male Female Material Status Single Married Baseline factor activity Level Mild hemophilia: between >5 - 40% Moderate hemophilia: between >1 to 5 % Severe hemophilia: less than 1 % Not known Age Group 0-4 5-13 14-18 19-44 45-> Current inhibitor status No Yes Not Tested HCV No Yes Not Tested HIV No Yes Not Tested HBV No Yes Not Tested

Chapter Lahore Chapter Rawalpindi Chapter Quetta Chapter Peshawar Chapter Karachi Chapter Baseline factor activity Mild hemophilia: between >5 - <40% Moderate hemophilia: between >1 to <5 % Severe hemophilia: less than <1 % Not known Diagnosis Hemophilia A [VIII] Hemophilia B [IX] von Willebrand disease Factor I deficiency Factor II deficiency Factor V deficiency Factor V+VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Factor XIII deficiency Other hereditary bleeding disorders: type unknown Platelet disorders: Glanzmann's thrombasthenia Platelet disorders: Bernard Soulier Syndrome Platelet disorders: other or unknown Gender Male Female Material Status Single Married Current inhibitor status No Yes Not Tested HCV No Yes Not Tested HIV No Yes Not Tested HBV No Yes Not Tested Joint deformity No Yes

Gender Male Female Material Status Single Married Age Group 0-4 5-13 14-18 19-44 45-> Diagnosis Hemophilia A [VIII] Hemophilia B [IX] von Willebrand disease Factor I deficiency Factor II deficiency Factor V deficiency Factor V+VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Factor XIII deficiency Other hereditary bleeding disorders: type unknown Platelet disorders: Glanzmann's thrombasthenia Platelet disorders: Bernard Soulier Syndrome Platelet disorders: other or unknown Baseline factor activity Mild hemophilia: between >5 - <40% Moderate hemophilia: between >1 to <5 % Severe hemophilia: less than <1 % Not known Current inhibitor status No Yes Not Tested HCV No Yes Not Tested HIV No Yes Not Tested HBV No Yes Not Tested Joint deformity No Yes

Chapter Lahore Chapter Rawalpindi Chapter Quetta Chapter Peshawar Chapter Karachi Chapter Gender Male Female Material Status Single Married Age Group 0-4 5-13 14-18 19-44 45-> Current inhibitor status No Yes Not Tested HCV No Yes Not Tested HIV No Yes Not Tested HBV No Yes Not Tested Joint deformity No Yes

Chapter Lahore Chapter Rawalpindi Chapter Quetta Chapter Peshawar Chapter Karachi Chapter Gender Male Female Material Status Single Married Age Group 0-4 5-13 14-18 19-44 45-> Current inhibitor status No Yes Not Tested HCV No Yes Not Tested HIV No Yes Not Tested HBV No Yes Not Tested

Chapter Lahore Chapter Rawalpindi Chapter Quetta Chapter Peshawar Chapter Karachi Chapter Material Status Single Married Age Group 0-4 5-13 14-18 19-44 45-> Baseline factor activity Level Mild hemophilia: between >5 - 40% Moderate hemophilia: between >1 to 5 % Severe hemophilia: less than 1 % Not known Diagnosis Hemophilia A [VIII] Hemophilia B [IX] von Willebrand disease Factor I deficiency Factor II deficiency Factor V deficiency Factor V+VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Factor XIII deficiency Other hereditary bleeding disorders: type unknown Platelet disorders: Glanzmann's thrombasthenia Platelet disorders: Bernard Soulier Syndrome Platelet disorders: other or unknown Current inhibitor status No Yes Not Tested HCV No Yes Not Tested HIV No Yes Not Tested HBV No Yes Not Tested Joint deformity No Yes

Chapter Lahore Chapter Rawalpindi Chapter Quetta Chapter Peshawar Chapter Karachi Chapter Gender Male Female Material Status Single Married Age Group 0-4 5-13 14-18 19-44 45-> Current inhibitor status No Yes Not Tested HCV No Yes Not Tested HIV No Yes Not Tested HBV No Yes Not Tested Joint deformity No Yes

Chapter Lahore Chapter Rawalpindi Chapter Quetta Chapter Peshawar Chapter Karachi Chapter Material Status Single Married Age Group 0-4 5-13 14-18 19-44 45-> Current inhibitor status No Yes Not Tested HCV No Yes Not Tested HIV No Yes Not Tested HBV No Yes Not Tested Joint deformity No Yes