In the Western world today, it is possible for a child with hemophilia receiving adequate treatment to live a near normal life. An accurate diagnosis is quickly established, the family is educated on the management, and the child is put either on prophylactic factor replacement or on-demand replacement given at home. With this type of treatment most children with hemophilia (apart from the small number who develop inhibitors) can go to school, enjoy sports, and expect to have minimal or no joint bleeding. This level of treatment is expensive. In Sweden, for example, it costs US$ 100,000 per year to provide prophylactic factor replacement for one child with hemophilia. However, the cost of providing prophylaxis for all children with hemophilia in the country represents only 0.2% of the national health budget.
This is not the case in most developing countries where the government does not have the resources to buy the necessary quantities of coagulation factors in the face of more urgent health priorities and hardly any patients can afford to pay for their own treatment even for on-demand home therapy. In this situation hemophilia is managed by using every available option that does not require expensive treatment products.
The three major problems with regard to hemophilia care in developing countries are:
- inadequate knowledge;
- lack of facilities for a proper laboratory diagnosis; and cialis over the counter
- inadequate supply of affordable, safe factor.
For over 2 decades, the “Pakistan Hemophilia Patients Welfare Society® [PHPWS]” has provided national leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. PHPWS save and improve lives of our community by:
- Empowering patients in order to make them community activists;
- Advocating for adequate supply of safe treatment products; and
- Educating people with bleeding disorders to help them live healthier, longer and more productive lives.
Through our network of committed volunteers and associated stakeholders, the PHPWS acts as a catalyst to bring about needed change. To this effect, the PHPWS operates through its Chapters to work with motivated health care providers, patients, their families and members of the community to foster quality health care for people with bleeding disorders. The Pakistan Hemophilia Patients Welfare Society [PHPWS], a national not-for-profit organization, was established in 1995. It is a national network of patients with Hemophilia and has official recognition from the World Federation of Hemophilia [WFH] as National Member Organization [NMO].